20 May, 2011

PostHeaderIcon The "official" video from the Bulgaria conference!!!

First, let me say that this was a huge joint effort  that could not have been done without the wonderful people in Bulgaria and the amazing team of people who traveled from the US and the UK to help make this conference possible.  We also want to think everyone who donated money to make this trip and the conference a reality. Please listen closely to the words used in this video...HOPE, ENCOURAGEMENT and the belief that children with Down syndrome CAN learn! 

 We continue to support the parent group in Bulgaria. Plans are already under way for the next level of support for them. Our fundraising efforts are starting again as well. Our goal is to raise the money needed to translate all of the DSE research based materials into Bulgarian so that all the parents, teachers and professionals have access to information. Our next direct work in Bulgaria will be to meet with the families to show them specific ways to adapt curriculum and provide modifications so that their children can participate in kindergarten and school. We also want to continue to support the teachers and the therapists and also the orphanage directors and workers who are caring for the children with Down syndrome that are in institutions.  There are many exciting things planned as we continue to partner with the families and professionals in Bulgaria!

This video also has a Bulgarian version that will be shared all over Bulgaria to continue to raise awareness about the potential of people with Down syndrome. It is our hope and prayer that there will come a day in Bulgaria when EVERY SINGLE CHILD that is born with Down syndrome is taken home with their family and that this, raising the child in the family, becomes the norm in their society. 


22 March, 2011

PostHeaderIcon Saturday evening: Meeting with parents

On Saturday evening, we met with some of the parents in Sofia.
This was a time for them to share their concerns, specific issues that they are struggling with and for us to ask questions to get a better idea of the situation in Bulgaria.
They provided us with some really great information on what typically happens in the hospital after a baby with Ds is born (for the record: just like in the US, each families experience is very different and one mom DID have a positive experience at birth). They also talked about the medical care available, what therapy services look like in Bulgaria and how the school system works. It was very interesting to hear about all the cultural differences from what we experience (though us moms did assure them that we too have to advocate with doctors and schools!). 
The overwhelming theme that we kept hearing was:
1.) Families need support and accurate information when the child is born
2.) Early intervention is a huge need
3.) School is a challenge
(education is needed on inclusion, how to provide support for children with Ds in the classroom, etc)




I must say though.....
the "star" Saturday evening was this little cutie:



She is quite the little charmer! 
She's also been in an inclusive program since she was 2 years old and is being educated with her typical peers in kindergarten (what we in the US call pre-school). She is a wonderful example of a situation where the family advocated for their child and things are going very well.
She spent some of the evening attempting to teach a few American women the Bulgarian alphabet.
It was quite funny and I'm sure that she thought that they were crazy for being adults and not knowing their alphabet :) 
Did I mention that she is a doll? 


PostHeaderIcon Saturday: Orphanage visit

On Saturday morning, we visited an orphanage in Sofia.
We were not allowed to take photos of the facility or the children.

This particular orphanage is 1 of 3 orphanages in Sofia that is for children from 0-3 years old. However, they actually have children up to age 7 in this particular facility. The facility is set up so that one side of it is the orphanage (children live there 24/7) and the other side of it is a daycare (children are there daily and go home to their families at night). Some of the children in the orphanage have families that visit (so they are not legally available for adoption) and others are legal orphans.

We received a lot of information from the staff. They were all very nice and answered all of our many questions about the children, the facility and their thoughts on why children with Down syndrome are placed in orphanages at birth and what the struggles for families are in their country.

We were able to meet and interact with 7 children with Down syndrome. One of them already has a family that has passed court and will be coming to pick him up very soon. For me, personally, it was such a sweet moment to hold him in my arms and know that his days there are numbered and that he is going HOME. We also got to hold some babies. I can't even begin to describe how very hard it is to hold such tiny babies and to know that their lives could be....SHOULD be....so much different. I don't think I'll ever forget the feel of the 3 month old baby girl that I held in my arms or the absolute desperation that I felt in that moment. Visiting orphanages is such a mixed blessing....holding the children, loving on them and praying over them silently is an honor and a privilege. But walking out while knowing what their day in and day out reality is....and the very real truth that many of them will never know the love of a family....it is just absolutely heart breaking.

There is so much I could say on this topic or about the children. But, the point of this post is to say this:

That place is part of the WHY behind the continued efforts of Connecting The Rainbow. The ONLY way that children with Down syndrome are going to stay out of orphanages is if the society's views are changed. That starts by educating and supporting the families that are raising their families, providing up-to-date and accurate information to doctors and therapists and encouraging therapists, teachers and families to work TOGETHER for the children. It's about sharing the why and how of some of the simplest of interventions that can go a long way in helping the children. It's about lifting these families up and saying,  "You CAN make a difference" as they fight for change in their country. Those babies in that orphanage just motivated me even more that THIS is such a very valuable piece of the mission to stop the orphan crisis.
19 March, 2011

PostHeaderIcon Friday: Dinner with everyone!

On Friday evening, the entire team went to dinner at a traditional Bulgarian restaurant. 
From left to right:
Amy, Bessie, Angie, Brigitte, Shelley, Becky, Phil, Frank,
Valentina, Tanja and Toni.

For those of you that are curious about
"traditional Bulgarian food",
these are the platters that were ordered for us to eat
(we had 2 of each):


During dinner, we discussed the current "cultural climate" in Bulgaria in regards to health, education, early intervention (or the lack thereof) and the needs of the families who are raising their children with Down syndrome. Frank also shared the progress of the project in Ukraine to give the Bulgarian parents an idea of what is being done in other parts of Eastern Europe.

Toward the end of the evening, we were treated to some Bulgarian music and dancing

PostHeaderIcon Friday: Special Needs Center

Friday morning, we visited a privately owned special needs center in Sofia.
Since this center is a private for-profit facility, it does not receive any funding from the government.
The director of the center has trained in Germany and uses a Montessori approach to teaching and therapy.
 The center has several programs. In one area, there is an all day therapy program for young children with special needs. The children receive speech therapy and other instruction using the Montessori approach. The children are separated in groups based on their age.

 The second part of the facility is evaluations and private 1:1 therapy sessions. These are done daily from 0800-1900 in one hour sessions with children with special needs. Families pay $30 for a one hour private therapy session.
 The third part of the program is an all day therapy program for children with Autism. This classroom also follows the Montessori approach and the class is divided into centers. The children have a sensory area, a work station, an arts/play area and a section where they learn daily living skills using real objects from their daily lives (ex: a store set up where the buy their favorite foods to learn about money).



 The director of this center is very pro-active and uses a variety of techniques to teach the children that come to the center. There were an impressive amount of developmental toys, teacher made materials and resources for the children to use. For the children that attend the all day program, each child is working on skills based on their individual needs and progress is being seen. The therapy center also serves as a training area for students who are studying to be therapists. The director hires interns to train in the Montessori methods and to learn how to work with the children with special needs. The majority of the children that attend this center have Autism or Down syndrome.

17 March, 2011

PostHeaderIcon Hello from Sofia!!!

We're here!
Well, some of us are.
The rest of the team arrives tomorrow.
Brigitte and I are settled in at the hotel and
thanks to all the stuff for the conference,
our hotel room is already a wreck :)
Here are some of the many items that will be given out
as people sign in at the conference:
 A folder, a notebook (for taking notes),
a pen (can't take notes without something to write with)
a CTR brochure (in Bulgarian),
and a magnet
(because EVERYONE deserves the BLESSING of a child with Down syndrome)

The left side of the folder will be filled with translated documents
that we will add to the folders tomorrow.
Then, it's all going inside a bag:
We have 200 of these to give out and there are
over 150 people already registered to attend!

Tomorrow, the weekend events begin!
For tonight, we're going to bed to get our bodies adjusted to the time difference.
CHAO!
16 March, 2011

PostHeaderIcon It's time!

Today begins the journey to Bulgaria for a jam packed weekend full of events! Some of the team will arrive in Bulgaria on Thursday and everyone else will join us on Friday.
On the schedule for this weekend:
  • Touring special needs centers in Sofia to observe therapy/educational settings.
  • Visiting an orphanage and speaking to the director and the doctor about the care of children with Down syndrome. We will also have the opportunity to meet the children with Down syndrome that are living at this facility. We'll be leaving some donations there as well. 
  • Meeting with the parents on Saturday night for an informal Q&A/discussion time and social
  • Conference all day on Sunday
I also have a big meeting in regards to adoption related issues this weekend as well.

I'm, personally, very much looking forward to getting to post photos of everyone that's traveling from the US and the UK to attend the conference....because that means that I will finally get to meet all these wonderful people in person!
05 March, 2011

PostHeaderIcon Some of the items that your donations have provided for the kids in Bulgaria

This is some of the many items that the funds donated to
Connecting The Rainbow for this trip to Bulgaria are going toward:

This is a complete set of DSE International Journals.

These cover topics such as: general development, social development, memory skills, reading, math, speech & language and family issues. In addition to purchasing the journals, we are also able to pay
to have each of the journals translated into Bulgarian.
*In addition to this, we will also be funding the translation of the entire
See and Learn reading program into Bulgarian.
Families will learn the basics of using this program at the conference.*


 The first 2 curriculum sets from Touch Math
The families asked for curriculum that they could use to teach their children basic skills.
These kits are on disks, so that the materials can be reproduced over and over again for families.
The funds to cover this plus the funds to cover the above mentioned translation of the
See and Learn reading program means that families will have
 a reading and a math program to teach beginning skills to their children!


 Flashcards!

These are all number flashcards.
In addition to these, we have created flashcards that teach shapes, colors and numbers
with the words all in Bulgarian. These will be provided on disk so that the group can reproduce them
over and over again for families to use.

Craft supplies for OT activities: 
 There are A LOT of these because in addition to sending supplies home with each family,
we will be doing activities with the children during the conference, sending "goody bags" of supplies
back with orphanage staff that attend the conference (and therapists too) AND we will be delivering supplies to a local orphanage.



Bags, bags and more bags: 

There are 100 of these! They will be filled with all the items above
and other things for all the children, orphanage staff and therapists that attend the conference.
*If you ever want an opportunity to REALLY share about the plight of families raising children with Down syndrome in Eastern Europe and the critical need to help them so that their children don't end up in orphanages after birth, just go to Wal-Mart and ask to purchase 100 bags for a mission project :) I was able to hand out Reece's Rainbow business cards to everyone in the check-out area who was wondering about the crazy lady with a cart full of craft supplies and a huge box of blue bags!*

Though this doesn't seem like a whole lot of items just by sharing the photos, this actually represents thousands of dollars. Purchasing curriculum, research journals, educational supplies  AND THEN paying to have it all professionally translated and printed is quite costly.
This is why your support and donations are SO CRITICAL to the work that CTR is doing. 

We are so thankful to all the people who have stepped forward and donated toward this project!!!

02 March, 2011

PostHeaderIcon 2 weeks from today!

In two weeks, I will board the first of several flights that will take me to Bulgaria for the World Down Syndrome Day festivities! I will arrive in Bulgaria on Thursday, along with a couple of other people. The rest of the team will arrive on Friday. I am planning posts for the week leading up to the trip to introduce everyone that is going, so you can "meet" them all then :)
 Everything from the conference is coming together nicely and we're very excited about everyone that will be speaking at the event. This week, we received word that orphanage directors and caregivers will be in attendance, some driving from several hours away to learn more about Down syndrome and what they can do to improve the lives of the children in their care. We're very excited to have the opportunity to share with them too! The families have been compiling lists of questions for us too. It's been very helpful to hear straight from them exactly what they want to learn more about.

We've had a tremendous amount of donations so far and we are so very thankful for all the support for this trip! We are still in need of funds to cover some expenses. People have asked for ideas of things we're seeking funding for, so here is a brief list:
1.) basic items/toys to give to the children. We're trying to put together gift bags for each of the children with items that can be used for play AND therapy (like play dough, foam stickers, puzzles, etc).
2.)Fund the big translation project to get all the DSE research journals translated into Bulgarian. We've already been able to purchase all the journals and now we're working to get them translated.
3.)Materials to give out to everyone who attends the conference. These are all very nice and I'll share photos of what the packets look like once they are all together.
4.) Toys and supplies for the orphanages: We are working to schedule a visit to an orphanage and we already know that orphanage directors are coming. We'd love to send "goodie bags" back to the orphanages with the workers.

This is just some of many different things that the money is being used for. Donations can be made by clicking on the link in the side bar ---->>>>
 

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